Introduction

This explains why information is collected about you, the ways in which this information may be used and who will be using it to help care for you.

There are 2 basic reasons for sharing data

1. Sharing Data For The Purpose or your Direct Care

One way of sharing for your care is the Summary Care Record

If you decide to have a SCR, it will in its basic form contain important information about any medicines you are taking, allergies you suffer from and any bad reactions to medicines that you have had.

Giving healthcare staff access to this information can prevent mistakes being made when caring for you in an emergency or when your GP practice is closed. Your Summary Care Record will also include data to uniquely identify you correctly.

You can also ask your practice to include additional information such as current conditions on your SCR. It is very straight forward to add but we can only do this with your express permission.

For more information on SCR : Phone 0300 123 3020 or visit www.nhscarerecords.nhs.uk

Another way of sharing for your care is SystmOne Data Sharing

The practice uses a clinical computer system called SystmOne. The system is also used nationally by other GP practices, Child Health Services, Community Services, Hospitals, Out of Hours, Palliative Care services and many more. This means your information can be shared with other clinicians so that everyone caring for you is fully informed about your medical history.

You can control how your medical information is shared with other organizations that use these systems.

As a default for both SCR and SystmOne we will set your record as available to share.

1. Sharing – You can opt out of both SCR and/or SystmOne sharing at any time. We will then set you record to not share out to other services/clinicians.
2. If you decide to make your details available to share – When you visit another service, using these systems, they will still ask your permission to view your data. You can always decline permission at the point of care. In this way you can decide which services you want to have the data and those you may not want to share with.
Benefits of sharing information

Sharing information can help improve understanding, responses to different treatments and potential solutions. Information will also help to:

Provide better information to out of hours and emergency services
Prevent Prescribing of medication to which you may already have an allergy
Remove the need for you to repeat all your medical information each time you visit a different service.
Make more informed prescribing decisions about drugs and dosages, avoid unnecessary duplication in prescribing
Increase Clinician confidence when providing care
Results of investigations, such as x-rays and laboratory tests
Reduce referrals, ambulance journey admissions, tests, time wastage and visits to healthcare premises
Find out basic details about you, such as address and next of kin
Do I have a choice?

Yes. You have the right to prevent information about you from being shared or used for any purpose, except in special circumstances. This will prevent your confidential information being used other than where necessary by law.

Declining on behalf of others

If you are a Carer and have a Lasting Power of Attorney for health and welfare then you can decline on behalf of the patient who lacks capacity. If you do not hold a Lasting Power of Attorney then you can raise your specific concerns with the patient’s GP.

If you have parental responsibility and your child is not able to make an informed decision for themselves, then you can make a decision about information sharing on behalf of your child. If your child is competent then this must be their decision.

Do I need to do anything?

Note your decisions on the enclosed form and return to Reception. You can change your mind at any time, just complete another form.

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